Frost Wolf

Character Sketch

Title: Frost Wolf (Wolves of the Beyond book 4)
Author: Kathryn Lasky


Faolan

You are a malcadh, born with a splayed paw - a deformity that is
not permitted in the clans. On your first day of life, you were
removed from your mother's breast and left at a tummfraw to die.
But against all odds, you didn't die. You were rescued by a great
grizzly bear who was morning the loss of her cub. She became your
second Milk Giver. You called her Thunderheart, because of the
loud beat of her enormous heart. She named you Faolan, which
meant gift from the river.

Oh, Faolan, how I wish you could have lived with Thunderheart
forever. When she was lost to you, you found your way back to the
MacDuncan clan to take your position as a lowly gnaw wolf. This
never did suit you. It was clear you had a more important destiny
ahead. At last, you earn a place as a Wolf at the Watch of the
Ring of Sacred Volcanoes.

In your new position of honor, you have been sent on a mission to
investigate the disappearance of the wolves at the Blood Watch,
who guard the borders of the Beyond to keep away brutal
Outclanners. What you find is most disturbing. This is a time of
famine, as blizzards blanket the Beyond with snow during the
summer months. The Blood Watch has been nearly deserted. Nearby,
circles of wolves dance until they collapse, all the while
singing for Skaarsgard to bring them death and guide their souls
up the star ladder to eternal life in the Cave of Souls.

As you helplessly watch, an outclanner appears and begins to feed
on the fallen wolves. You are disgusted beyond belief. This is
not the way of wolves. This is not natural. Yet, the frighting
spread of these Skaarsgard dancers threatens to wipe out the
population of wolves in the Beyond.

It is up to you, Faolan,, Watch Wolf at the Ring of Sacred
Volcanoes. You must find the so-called prophet and put an end to
this nonsense, before it's too late. Your failure would mean the
extinction of wolves in the beyond.


Edmea

You, too, were born a malcadh and endured years of torment as a
gnaw wolf. Now you are on the Watch at the Ring of Sacred
Volcano. Faolan is your best friend in all of the beyond. You are
his partner and must stop these Skaarsgard dancers before all is
lost.

Edmea, you have accepted life with only one eye and found peach
on the Watch. But there is something more. You must now learn to
see with you inner eye, to perceive what others miss with their
two functioning eyes.

What you see makes no sense. You swear that Faolan appeared
before you as an ancient wolf covered in frost. During a fight,
you have no doubts that his body changed into that of a great
grizzly bear. You are the only one who saw this, Edmea. You
wonder, What are you, Faolan? Only time will tell.


Mhairi and Dearlea

You are the sisters who befriended Faolan long before he became a
Wolf at the Watch. You stuck up for him and helped when he needed
it most. It was through you, dear sisters, that Faolan learned
the meaning of friend.

Now you are the ones who are hurting. In the midst of her famine
mind sickness, your mother has denounced you. She claims she
never was your mother. She became your second Milk Giver after
your first gave birth to a malcadh and was driven out of the
clan.

Faolan knows that only one malcadh was born to the MacDuncan clan
two years ago. You were friend. Now you have the chance to teach
Faolan about family.


The Sark of the Slough

You are a mystery and a misfit. No wolf knows your story. Where
did you come from? Why do you choose to live as a lone wolf?

But they come to you when in need. You may refuse the ways and
laws of the wolves, but when hit with sickness or trouble, they
always seek you out.

You are a mystery, indeed. But you also love a mystery. Deduction
and reason are the principles you live by. With your keen sense
of smell, you are well suited for the task. There is a mystery
now, Sark of the Slough. Will you help?


Gwynneth

You are a masked barn owl, a rogue smith. You live in the Beyond,
far away from the Great Ga'Hoole tree. Like your father, you are
well learned in the ways of the wolves.

Gwynneth, how often you think of your father. You were just a
hatchling when he died in battle somewhere in the Beyond. He was
the only owl ever to have a wolf hero mark placed upon his
grave. Now you sense disturbance. Someone has tampered with his
resting place and stolen his helmet and visor. You must find and
return them to his grave, so he can rest in peace once more.

Now you turn to your friend, The Sark of the Slough. You are
likely her only friend, Gwynneth. With her sense of smell and
your superior hearing and vision, you make an excellent team.
Together you will find your father's helmet. You must. However,
the truth of what is happening will sicken you. Are you ready,
Gwynneth?

my date with the sun

My Date With The Sun

I was drawn outdoors as the afternoon blossomed into a lovely
Spring day.
I lay on my yoga mat, flat on my back with my face turning up to
the sky.
I felt the burning rays on my body and knew the sun had returned
at last.

Hello, Mr. Sun, how nice to see you again.

Hello, sweetheart, I have missed you.

Suddenly, my cheeks were ablaze with a touch of fire.

Silly, Mr. Sun, did you just kiss me?

Sorry, dear one, I couldn't resist.

A flutter of wings engaged my attention as a butterfly alighted
on my arm.

Good day to you, Miss Butterfly.

Can't stay, my friend. Enjoy your date with the sun.

And I did.


Angela C. Orlando
May, 2012May, 2012

mother's day at the movies

When you are a parent, it's such a normal thing to do... taking
the kids to the movies. You just need to find the time and some
extra money. But you do it to make your children happy and
because you enjoy spending time with them.

How can a parent like me do anything normal? I'm totally deaf and
blind. Television and movies are no longer part of my life. I
certainly can't drive. So there's yet another thing I can't share
with my son. Just add it to the hundred others.

Now wait a second... That's not how I think. It's probably what
many people believe of me. I don't care about that either. My
theory is, "If there is a will, there is a way."

My son is almost 11-years-old, and we have never gone to a movie
together. I find that quite sad. Today, I decided it was time for
us to go out and do it.
Joseph was dying to see Avengers in 3D. We checked the times of
the movie and asked my father if he could drop us of. That worked
for him. The plan was set, and we were eager to get going.

Joseph guided me to the concession stand, where they sold tickets
and snacks. I ordered what we wanted. Joseph told me the price
and I paid. I asked for an employee to bring out our snacks,
because Joseph would need to guide me to my seat. That was no
problem.

We had a big bucket of awesome popcorn. Joe had a blue Icee, and
I had a Dr. Pepper and Sour Patch Kids. Of course, we sat there
eating tons of popcorn while waiting for the movie to start. The
bucket was half-full when I couldn't eat another bite. Joe took
care of the rest for me.

I was probably the only adult who didn't feel nauseous from Super
heroes in 3D. I did not idly sit there doing nothing. I had my
Braille Note with me and read "Frost Wolf." It's a nice peaceful
book that didn't match the BOOMs I heard and vibrations I felt.

Throughout the movie, I would feel Joseph reach out to steal my
Sour Patch Kid's. He even ended up with my Dr. Pepper. I just
smiled because he's my son and I love him so much.

When the movie was over, Joseph threw away the trash and took the
tray back to the concession stand. I sent a text message to my
father letting him know we were ready to leave. Joseph came back
and guided me out. It was so simple and so very normal.

You probably do it once a month with no thought of a different
way of life. That's okay. It's a natural reaction. For me, this
was something new and special. All I needed was a ride and the
help of my loving son. There is nothing I would rather do more
than spending Mother's Day at the movies.

Mockingjay

Character Sketch

Title: Mockingjay (The Hunger Games Trilogy book 3)
Author: Suzanne Collins

Katniss Everdeen

At 17-years-old, you are finally beginning to understand. You
have never left the Games. Once a Victor, always a pawn.

Your home is destroyed. Peta is gone. Everyone has played you for
a fool, Katniss.

Now they want you to sing as their Mockingjay. You do, but are
you helping the right side? Who is the true enemy? Trust no one.
You are on your own. Poor Katniss... There is heartbreak ahead
for you now.


Peta Mallark

The Capitol has you, and they plan to use you. Your mind is
hijacked. You are programmed to kill.

Peta, your thoughts are a jumbled mess. You can't determine fact
from fiction. You love me, real or not real? You'll only get an
answer if you let her survive.


Gale Hawthorne

You are fierce and fiery. The rebellion suits you well. You have
a gift for the hunt, and you aren't afraid to use it against
humans. Be careful, Gale. You think you know what Katniss needs.
You might be surprised by the truth.


President Coin

You are the leader of the rebellion, living far underground in
District Thirteen. Gray hair, gray eyes, gray uniform, gray
spirit... You stand for order and obedience. But are you what
Panem really needs in a future leader? You have your own agenda,
President Coin. It might just spell your doom.


President Snow

So the truth is out about your poisonous ways. Are you afraid,
President Snow? You should be.

poster child

Poster Child

They point at me and say their lines
You are inspiring
You can do anything
You are a role model to everyone
We are so proud of you

I die a little because I know the truth
I'm a fake
I do nothing to deserve such praise
There's no reason to admire me
My life is just a waste

I begin to believe the propaganda
I can be more than this
I'll move on and never stop
I'll make my dreams come true
I'll show them what I can do

They tell me what they really think
It's a bad idea
You will fail
No, you can't do it
You are making trouble for all of us

I'm just a poster child
Smile!
You look so good on film
Your story is amazing
Keep up the good work

Just a poster child... And those who matter don't believe in me


Angela C. Orlando
May 2012

Cathing Fire

Character Sketch

Title: Catching Fire (The Hunger Games Trilogy book 2)
Author: Suzanne Collins


Katniss Everdene

You are a Victor now, but what does that mean? The strategy that
saved you has broken another's heart. You can't seem to figure
out what to do net. One thing is clear, the game isn't over for
you, Katniss. Watch your every step. It started with a handful of
berries... one act of rebellion to save your life. You lit the
flame, Katniss. Now you are catching fire.


Peta Mallark

Peta, you dear heart. You loved so deeply and never had a clue.
For her, it was a way out. For you, it was life and death. Now
you are right back where you started. Once again, you would do
anything to keep her alive. Yet, something is different, Peta.
Her only wish is to save you.


Gale Hawthorne

You and Katniss have be together in the hunt for five years. The
woods is your refuge and means to survive. She won't accept the
idea of a relationship. A hard life and cruel nation has closed
her off from such thoughts. But you love her anyway. You can't
help it.

You nearly lost her in the arena. Now she's back, but you don't
know what to do about Peta. Do you really have doubts, Gale? She
took a lashing in the face for you. It doesn't matter. She's gone
again, and you aren't even allowed to say good-bye. Hold on to
hope, Gale. You have your own role in this game.


President Snow

Such a gentle name. Is it to hide your evil nature? Why the
roses? And why does your breath smell of blood?

It began with a handful of berries... As you say, Katniss
Everdeen, the girl who was on fire, you have provided a spark
that, left unattended, may grow to an inferno that destroys
Panem. Someone will destroy Panem, President Snow, you need only
to look in a mirror to find out who.


Mockingjay

You are a bird that was never intended to exist. That, alone,
makes you a rebel of sorts. Your greatest love is to sing, and
you do.

A mockingjay pin, a little girl who sings... a batch of deadly
berries. What does it all mean? And why are you always involved?

Diagnosis Salad

Diagnosis Salad

Begin with a base of crisp usher syndrome. Add diced guilliami
barre syndrome and sliced mitochondrial myopathy. Mix in chunks
of carpal tunnel syndrome. Layer with shredded tendonitis. (For
best results, use both tennis and golfer's elbow.) Include bits
of rotor cuff sprain and one cup of chopped bursitis. Then stir
in some vitamin d deficiency. Cover with myalgia. For a bolder
taste, use fibromyalgia. Finally, sprinkle with insomnia and
restless leg syndrome.

Now doesn't that sound good?

Angela C. Orlando
Revised April, 2012

The Hunger Games

Character Sketch

Title: The Hunger Games (The Hunger Games Trilogy book 1)
Author: Suzanne Collins

Katniss Everdeen

You are just another teenager starving in District 12. But no one
would ever call you helpless. When your father died, you learned
to break rules, hunt and feed your family. You've become a master
of the bow and arrow. That is your savior, Katniss.

What horror you must have felt at the Reaping when your sister's
name was called. Prim is the only person in the world you think
you love. So you stepp forward to take her place in the Hunger
Games. You know this means your death in the arena, while the
Capitol celebrates and bets on how long you will last. What
happens net is up to you. But always remember, you are Katniss,
the girl who was on fire.


Peta Mallark

You are the doomed boy chose to represent District 12 in the
Hunger Games. You seem resigned to your fate, yet something else
is going on. In a sick way, this is your dream come true. Peta,
the baker's son, what do you possess that will keep you alive?
You have only one chance, and that is love.


Haymitch Abernathy

In 73 years, District 12 has produced only two Victors. You are
the one still living. But, Haymitch, you are a disgusting drunk!
The entire nation knows you as the embarrassment of District 12.

What is your problem, Haymitch? What are you trying to escape? Is
it the memories of what happened in the arena? Are you haunted by
the ghosts of the children you killed? Or is it the faces of all
the Tributes you couldn't save as a mentor?

Pull yourself together, Haymitch! These kids need you. You are
their only hope for survival.


Rue

Rue, sweet Rue... You are the unlucky 12-year-old chosen as
Tribute for District 11. You are a flower, so much like a
Primrose. But no one sacrifices themselves for you.

You are the little bird who flies from tree to tree. You sing to
the MockingJays, and they sing back. You know you have no chance
of winning. But before anyone can kill you, first they have to
catch you.


Panem

Panem, you are a despicable nation. The Capitol rules while the
Districts suffer. That's the way President Snow wants it to stay.
Just so the lowly people in the Districts remember their place in
life, the Hunger Games will always serve as a reminder.

Nearly 75 years ago, the Districts rebelled. You won that war, of
course. They never stood a chance. You destroyed District 13 with
your horrible weapons. The remaining Districts face daily hunger
and harsh punishments. People are starving to death, while the
Capitol parties and throws away bucket loads of food.

That's not enough for you, Panem. You created the Hunger Games.
Every year, 24 children are thrown into an arena, to fight to the
death for your entertainment. 24 children... And there can only
be one Victor.

outstanding faculty member

Student Accessibility Services

Outstanding Faculty Nomination

Student's Name: Angela Orlando

Faculty Name: Dr. Katherine Orr

Classes Taught:
Introduction to Creative Writing Fall, 2010
Poetry Writing I Spring, 2011
Poetry Writing II Spring 2012

I the past, I was taking ASL classes here at Kent State.
However, my heart has always been in writing. Finally, I worked
up the courage to take Introduction to Creative Writing. I wrote
to the department chair and told him about my situation and
needed accommodations. My professor would have to be flexible,
easy-going, creative and determined. He told me to sign up for a
class with Dr. Katherine Orr. That's how this amazing experience
began.

I sent an email to Dr. Orr to introduce myself and explain about
my disabilities. I got the feeling she was truly excited to have
a deaf-blind student in her class. Her mind went right to work
on what would be needed. She even contacted SAS and made an
appointment with Sue Smith before the semester began. The
purpose of the meeting was to discuss what could be done to help
me succeed. No other professor ever thought to do that.

I always felt so alive in my writing classes with Dr. Orr. She
made me part of the class. She arranged the seats so I wasn't
sitting in a corner in the back of the room. I was physically
and emotionally included.

Dr. Orr called on me often. She had me read my work in class,
just like everyone else. Sometimes I wrote poems or stories
about my disabilities. Dr. Orr used that as an opening to
discuss the challenges I face and ways I triumph. But she wasn't
talking so much about my disabilities. She was referring to my
life and showing the other students that I'm not so different.
To Dr. Orr, I'm not a deaf-blind student or a student with
disabilities. I'm just a student with the desire to learn.

We ran into a problem right away. I discovered that I can't
understand poetry in ASL. Dr. Orr was on top of it. She would
not let this be a setback. She had all students send their
work ahead of time to Sue, so it could be converted into braille.
Sue would make a braille book and send electronic copies via
email so I had every students' writing in a format that I could
appreciate. When the students recited their work in class, I
read my braille book.

Through this class, I also discovered I liked to attend poetry
readings. Again, we needed a system so I could read the poetry
instead of using an interpreter. We figured out how to use my
assistive technology to solve the problem. Someone would type
on a keyboard connected to my Deaf-Blind Communicator, and I
could read it in braille. During the very first reading, it was
Dr. Orr who did the typing. I couldn't believe that a professor
would take the time to type for me. To Dr. Orr, it was no big
deal. She just wanted me to be able to enjoy the reading. And I
did.

During these readings, she always came over to talk to me.
Sometimes she just said hello. Other times she asked me what I
thought of the reading. She always made sure I got the
opportunity to meet the poets. This is how I met one of my most
supportive writing mentors.

Unfortunately, things were not going well with my health. I was
experiencing horrible pain in my arms, shoulders and neck. I
could no longer handle the signing, reading and typing. It was
with a heavy heart that I told Dr. Orr I would have to withdraw
from the class. Her response was, "No way." If I couldn't come
to class, that was fine. She was determined to keep me writing.
I finished the rest of the semester via email and earned an A in
the class. I felt such pride in myself that I was able to
complete It was all because of Dr. Orr.

My health was not improving. I had no intention of taking
another class. But Dr. Orr wrote and encouraged me to keep on
going. I took Poetry Writing I during the next semester. It was
all through email. I never actually stepped foot in the
classroom. But she made sure I was still a part of the class.
She read my work to the students and had them send me comments
and suggestions through email. I managed to write the eight
required poems. That was a huge accomplishment considering the
pain I was in.

I did not sign up for a class in Fall 2011. Ironically, that's
when I started to feel better. Dr. Orr gave me information about
what her classes were studying and the textbooks they used. I
did my own reading and never stopped writing new poetry. She
also sent me the Wick Poetry Center schedule for readings. I
attended a few that semester. Even though I wasn't a student,
Dr. Orr still took the time to chat with me.

I am a new writer with little confidence in my skills. Dr. Orr
seems to see budding talent in my work. She's so encouraging.
She makes me feel like I'm doing something special. Maybe I am a
good writer. Perhaps I can make a career out of this. If she
really believes in me, it must be true.

I was shocked when she asked me to do a reading with two other
"Outstanding Poetry Students" at the Wick Poetry Center. This
was my first poetry reading. There was an official flier with my
name and picture. There were people there who came just to hear
me read my work. They introduced me like I was a "real" writer.
I was terrified and exited at the same time. It was one of the
most thrilling moments in my life. Once again, I owe it all to
Dr. Orr.

For this Spring semester, I signed up for Poetry Writing II.
It's obvious how much I love Dr. Orr, considering this is my
third class in a row with her. In this class, she upped the
level of inclusion. If students don't send their work to Sue for
the braille book, they lose points. She encouraged them to talk
to me through my interpreters. Again, my work often led to
discussions about ASL, braille, mobility and other aspects
related to my life. Since she expressed so much interest in the
topic, I gave all students a card with the braille alphabet and a
paper showing the sign language alphabet. Dr. Orr had each
student learn to sign their name and introduce themselves by
spelling directly into my hand. Some students went further and
tried signing phrases so we could have a conversation. I was
totally astonished by this.

One day I was sitting on a bench before class when someone
touched my arm and gently took my hands. Slowly, she signed,
"Katherine." That's Dr. Orr. She prefers to be called
Katherine. Then she sat with me for five or ten minutes just
chatting. She worked so hard to remember how to form each
letter. Her willingness to do that touched my heart.

I love having Dr. Orr as my teacher. It saddens me that this is
the last class I can take with her. But I have a strong feeling
that she is not done with me. No matter what, she will always be
a writing mentor a friend. For all these reasons combined, I
nominate Dr. Katherine Orr as an outstanding faculty member.



Note: Dr. Orr was chosen as the nominee who best exemplified the
following criteria; taking an interest in students' unique
learning style, exhibiting creativity in their teaching methods
relative to student need and normalizing the classroom experience
for students with disabilities.
Dr. Orr was honored last and received a special trophy. The
trophy is made of natural wood stained in different shades of
brown with the following inscription: Making the Difference.
Awarded to Katherine Orr for your commitment to students with
disabilities. April 2012. Professor Orr also receive a framed
certificate.

Call for New Members

THE National Task Force on Deaf-Blind Interpreting (NTFDBI) is
calling for
new members for several positions that are available. We
currently have
openings for:

- Deaf-Blind user of interpreting services

- Certified interpreter (deaf or hearing)

- Certified Deaf Interpreter (an RID appointment)

The following is a description of the roles and
responsibilities of Task
Force members.

*Position Description for NTFDBI Members*

The National Task Force on Deaf-Blind Interpreting (NTFDBI) is a
task force
whose mission is to establish a standard of effective practice to
ensure
the quality and availability of interpreters for deaf-blind
people. The
NTFDBI is comprised of a demographically diverse group of deaf
and hearing
interpreters, deaf-blind people, interpreter educators and
others, all of
whom have a vested interest in quality interpretation and
interpreter
education that will impact deaf-blind people on a national level.

Expectations of Task Force membership are:

· Personal and/or professional involvement and expertise
in
deaf-blind interpreting,

· Ability to work with a group of people on issues
pertaining to
deaf-blind interpreting on a national level,

· Ability to attend one to two face-to-face meetings per
year
and/or participation in monthly or bi-monthly conference calls,

· Regular and substantive participation in online
discussions,

· Timely responsiveness to emails and online
correspondences, and

· Commitment to group work on projects leading to larger
goals and
timely follow-through.

If you are interested in applying for one of these positions,
please send
your resume and a letter of interest detailing your experience
and why you
are interested to NTFDBI@gmail.com - subject line: "new member
application". Please reply with your interest by April 30th,
2012.

Thank you,

Rhonda Jacobs, CI and CT, Co-chair, AADB Representative

CM Hall, NIC Advanced, EIPA Ed K:12, Co-chair, RID Representative

Primary colors

Primary Colors

There once was a world in which everybody was red. All the men
and women were red. The boys and girls were red. Even the dogs
and cat were red.

But for some reason that no one ever understood, sometimes a red
mother would give birth to a blue baby.

The people of the red world did not know what to do with these
blue babies. Obviously, they couldn't grow up among the red.
They were much too different. So they were sent away to a
special land just for blue people. There these children would
live among their own kind, have their own blue language and their
own blue culture.

Some red mothers just couldn't bear to part from their blue
babies. The mothers loved their babies and wanted to keep them
close. After all these mothers didn't ask to be hosts for a new
race. The blue babies were their offsprings, their flesh and
blood. Why couldn't people learn to accept blue babies and
treat them the same as everyone else?

It just didn't work that way. These children were NOT like
everyone else. They were blue, while everyone else was red.
That's a difference that can't be ignored.

So doctors invented a great new medicine that would turn blue
babies into red babies. The mothers and fathers were so excited.
Finally, their blue children could be normal!

This, too, was not so successful. Instead of becoming red, the
medicine turned those babies yellow. Now these children were
rejected by both the red and the blue. They weren't red enough
to be accepted by the main culture, and they weren't blue so
they couldn't be part of that group. There wasn't even a
special land for them to find peace in a yellow world. They were
different no matter where they went.. They always would be.
Oh, those poor yellow babies!

Why do we have to live in a world of primary colors? It must be
all or nothing... red or blue. There's no in between.

If only we could mix and blend. Then we would get the beauty of
the blue, the voice of the red and the strength of the yellow.

Red, blue and yellow. Orange, green and purple. A rainbow of
colors. A world of acceptance and understanding. A place where
all can belong. That is my colorful dream.

Angela C. Orlando
Revised April, 2012

pharc

PHARC

The doctor speaks in a husky voice, Well, Angela, How have you
been since our last meeting?

I mumble, fine, just like I always do.

I'm here for my semi-annual appointment with a genetist. He's
Dr. Marvin Natowicz, Ph,D/MD. Call me Marvin. This is the
doctor who acquires genetic cases no one else can diagnose. He's
a real-life Dr. House, MD, but Marvin isn't a jerk.

I've been here before. I know how it goes. It's our ritual
dance. He informs me that all previous tests were normal or
negative. The vampire lab takes more blood and urine. We repeat
the cycle every six months.

The doctor talks in his calm, cerebral manner.

Angela, as you know, I sent your blood to Germany for a special
test. The results came back positive.

My eyes widen as my jaw falls open. The room begins to spins.
My mind is a tornado of shock and disbelief. No, surely I
misunderstood.

Yes, after five years of intensive testing, we have finally found
the source of your medical condition. You have a genetic
mutation know as PHARC.

Fark? Did he just say fark?

The doctor begins to explain, PHARC, he says.
Polyneuropathy
Hearing loss
Ataxia
Retinitis Pigmentosa
Cataracts

As he elaborates, all the pieces fall into place. My vision
problems and eventual blindness, my hearing loss, my balance
issues and shaky limbs, The pain, numbness and paralysis of my
legs and feet.... It all comes together in one tidy package. I
have PHARC.

This is an extremely rare condition, he tells me. You are the
20th person world-wide to be identified with this gene mutation.

Once again, I'm falling off my chair. 20 people? It sounds like
a small number. I view it the opposite way. 20 people? That
means there are 19 others out there in the world who share this
nightmare with me. They have similar stories to tell. I'm not
the only one.

At home, I tell my son about PHARC. He listens carefully and
asks many questions. Finally, I complain about the name.
Why do they have to give it such a stupid name?, I ask him. I
feel so dumb telling people I have PHARC.
He speaks with that simple wisdom that only a child possesses.
It's a stupid disease. It deserves a stupid name.

At last, after 25 years of bewildering and searching, I have the
answer. I know what the enemy is. I've gained the peace of
understanding.

My name is Angela, and I have PHARC.

Angela C. Orlando
April, 2012

witch and wizard

Character Sketch

Title Witch and Wizard
Author: James Patterson

Wisteria Allgood

With your wild orange hair and bright blue eyes, you never blend
in with a crowd. That's just the way you like it, Wisty. At
15-years-old, you love to test limits. You dress all in black,
speak your mind and collect detention hours with a sense of
pride. Does that make you a witch? How horrible it must have
been when the New Order broke into your home to kidnap you and
your brother. All your mother offers was a ratty old drum stick.
You find yourself judged as a witch and sentenced to be executed
on your 18th birthday. I'm not a witch!, you proclaim over and
over again. But then you burst into flames, glow like a
spotlight and float over your bed when you sleep. Don't forget
the bad boy you accidently turned into a weasel. Who are you,
Wisty, and what is really going on?

Whitford Allgood

You are the most desirable Senior in your class, and you don't
even know it, Whit. You are handsome, muscular and an
outstanding athlete. But you aren't afraid to cry. The love of
your life disappeared. You and your sister are kidnapped. They
call you a wizard, the most dangerous threat to the New Order.
You'll be executed when you turn 18, which will happen in less
than a month. Still, all you can think about is saving Wisty,
Celia and your parents. You are a true Mr. Sensitivity. But how
did you stick your head through a solid wall and come
face-to-face with your beloved girlfriend?

Celia

You say it like it's no big deal. I'm dead, whit. I'm a ghost.
Well, actually you are a half-light who lives in the Shadowland.
You seem to know so much, but there's not enough time to explain.
If you don't get back to Shadowland, you will cease to exist
forever. Oh, Celia, if only you could embrace your love for just
a moment. Hugging doesn't come easy when you are a ghost. You
have the power to help. That's what is needed most right now.

The Weasel

They say what goes around comes around. It was true for you,
Byron Swain. You are a suck-up, traitor, know-it-all
Visitor-In-Training? You turned your own sister into the New
Order and didn't shed a tear when she was killed. You take such
pleasure in tell the Allgood kid's that they will be executed
imitatively. All Wisty did was turn you into your true form.
Enjoy your new life as a weasel. You deserve it.

The One Who Is The One

You are the leader of the New Order and the one who started this
nightmare. Do you lose sleep over the thousands of kids you've
killed? Probably not. You are like a bad energy power plant.
You say witches and wizards are dangerous, yet you are obviously
an evil wizard, yourself. Look at Mr. Bad Scary Due with his
bald head and long, black robes. Watch him turn into a tornado
and vaporized a hundred children. But what's up with the stupid
name? And why are you so interested in the allgoods?

I'm so amazing

I'm So Amazing!

I wake up at half past noon, and still don't want to get up. I
drag my lazy butt out of bed and enter the bathroom. I sit on
the toilet to have a nice, long pee. Then I wash my hands and
brush my teeth.
Glory be, I'm so amazing!

I find some jeans and an over-sized sweatshirt. I dress all by
myself. My shirt isn't backwards and both shoes are the same
color.
Look at me, I'm so amazing!

I stumble down the stairs without falling. I've missed
breakfast, and I don't want lunch. Eating is too much of a
chore. Why bother?

I grab my laptop and flop into my favorite recliner. The old,
green chair conforms to my body, as if to declare it's my throne.

I screw around on the internet all day long. Facebook is my
realm, and I am the queen. If only I could find a king... When
I'm bored with that, I check my email. I reply to the crap,
while leaving the important stuff for later.
Glory be, I'm so amazing!

At 7:00, I realize I'm starving. What a shock! I use my advanced
culinary skills to make myself a bowl of Lucky Charms. I spill
the milk and manage not to cry. The cereal hates me. Each
spoonful is milk and plain pieces that taste like cardboard.
Where are the blue moons, red balloons and rainbow pots of gold?

On the way back to my recliner, I trip over the dog. My can of
Dr. Pepper flies across the room. I rescue the can and let the
dog lick up the mess. That's why she has such a bubbly
personality.

My friend comes over to shoot the breeze. She tells me about the
real world. I gossip about what I read on Facebooks. Sarah
found out her roommate has been sleeping with her boyfriend. She
tossed his stuff into the pond and poured a jar of pickles over
Amy's bed. Isn't that what life's all about?
Look at me, I'm so amazing!

Before she leaves, she tells me I'm inspirational. I just roll
my eyes. Yeah, I'm super duper and absolutely wonderful. My
chair thinks so, too.
Glory be, I'm so amazing!

Revised April 2012

dot bug is not a dead bug

I'm aware that the pages of this blog have been rather empty
lately. But I assure you, Dot Bug is not a dead bug. Dot Bug is
a very busy bug.

Much of this has to do with my deaf-blind organization (Northeast
Ohio Deaf-Blind Association.) I'm learning that it takes so much
work to be a leader. I have no leadership training. I'm doing
the best I can. It must be good enough because activity is
booming.

In February, we had our first social event - snow tubing. In
March, we taught a workshop at a county board of developmental
disabilities. Next week we will have a booth at Lakeland
Community College Deaf Awareness Days. On April 21st, Lakeland
Signers is hosting a Dingo and all proceeds will go to NEODBA.
Whew!

I'm also busy with school and writing projects. My final poetry
chapbook is due on April 16th. I'm reading many poems to collect
my favorites for a class anthology. I also have a final paper
and a poetry recitation to do before the semester ends.

What is it about April 30th and deadlines? That's the deadline
to send funny stories to a friend who is working on a book. It's
also the deadline to submit creative writing for a Deaf
anthology. And then it's the deadline for a braille writing
contest. I'm working on all three. I might end up going crazy
before May arrives.

So, yes, I know I haven't been posting much lately. Don't worry,
I'm doing fine. I just have too much to work on right now.

Where I'm From

Where I'm From

I'm from my family, the youngest of three, the girl my mom
dreamed of, after raising two mischievous boys. From jumping on
the bed, fights with my brothers, and always getting my way.

I'm from Smurfs, Pound Puppies and Weekend Stories on Saturday
morning. From Cabbage Patch Kids, My Pretty Ponies and
Strawberry Shortcake.

I'm from climbing trees, running through the sprinkler and long
afternoons at the playground. From groups of giggling girls,
passing notes in class and being too cool for school.

I'm from blue jeans, over-sized sweatshirts and dirt on my face.
From soccer, softball and endless hours hitting a tennis ball
against a wall.

I'm from junior high boyfriends, holding hands and my first kiss
on a bus. From slumber parties, prank calls and frozen bras.

I'm from band camp, sore feet and late night pizzas. From
playing the saxophone, flashy brass and sweet, jazzy notes.

I'm from Kent State University, stuffy classrooms and monotonous
professors. From dreams of becoming a teacher, hard studying and
framing my diploma.

I'm from moving away, starting over and stepping into the real
world. From countless applications, constant rejection and
finally success.

I'm from my first classroom, dark faces gazing up at me and a
clash of two cultures. From discrimination, loss of faith and
resignation.

I'm from walking down that long aisle, a heavy, beaded dress and
hundreds of eyes staring at my back. From saying "I do," "I
will" and "til we are parted by death."

I'm from motherhood, dirty diapers, and baby bottles. From lack
of sleep, irritation and total love of my child.

I'm from abuse, divorce and returning home. From a chance at a
new life, hope and exploration.

I'm from small town life, elderly parents and sleeping in my
childhood bed. From the weary past, the anxious present and
unknown future.

That's where I'm from.

Angela C. Orlando
Revised March 2012

News from neodba

Northeast Ohio Deaf-Blind Association

News From NEODBA

Issue 001
March 27th, 2012

In this issue:
1. History and Mission
2. Snow Tubing Polar Blast
3. Cuyahoga County Board of Developmental Disabilities Training
Workshop
4. Upcoming Event: Lakeland Community College Deaf Awareness Days
5. SSP Coordinator Needed
6. Contact us

-----

History and Mission

Northeast Ohio Deaf-Blind Association was established in 2010 by
co-founders Angela Orlando and Judy Groner We are a non-profit
organization located in Northeast Ohio. Our goal is to bring
together people who are deaf-blind with volunteer Support Service
Providers for recreation and leisure activities. Our main focus
is to provide social opportunities for people who are deaf-blind
in a safe and supported environment.
NEODBA seeks to locate individuals who are deaf-blind who live in
the Northeast Ohio region. We encourage networking to help
identify new members to join our organization.

Our mission is to enhance the lives of people who are deaf-blind
by offering access to social activities and events in a safe and
supported environment. In doing so, people who are deaf-blind
become active members in the community in which they live. At the
same time, we bring awareness of the needs and capabilities of
our members to the general public.

In October 2010 and November 2011, we presented a day-long
Support Service Provider Training workshop. Students from Kent
State University, Tri-C and Lakeland Community college attended,
as well as interpreters seeking CEU credits and interested people
from the community. These workshops are highly successful, and
we will continue to offer at least one per year.

In October 2011, we hosted Deaf-Blind Spirit Night at Chick-fil-A
of chapel Hill. This was an excellent night of fun, awareness
and fund-raising. We plan to participate in various fund-raising
opportunities in the future.

-----

Snow Tubing Polar Blast

On February 26th, 2012, our dream finally came true. This was
the organization's debut social event: Snow Tubing Polar Blast at
Brandywine Ski Resort. Five deaf-blind individuals and about a
dozen volunteers came for three hours of fun in the snow. We
feel this was a good turnout for our first social. Everyone
enjoyed snow tubing. The hills were fast and bumpy... and so
much fun! The environment was filled with laughter, smiles and
screams of excitement. We will definitely return to Brandywine
for more snow tubing next winter.

-----

Cuyahoga County Board of Developmental Disabilities Training
Workshop

On the morning of March 19th, 2012, Angela Orlando and Nick
Abrahamson presented a special Introduction To Working With
People Who Are Deaf-Blind Training Workshop to employees at the
Cuyahoga County Board of Developmental Disabilities. More people
who are deaf-blind are now seeking service through the county
board of DD. It is not required for individuals to have
cognitive disabilities to be eligible. Most areas do not offer
SSP services or any other kind of specialized programs for people
who are deaf-blind. However, everything we need is already being
provided by each county board of DD.

The problem is that most of the agencies have not worked with
many deaf-blind people. They do not understand our needs and
preferences. At this workshop, we had the opportunity to teach
staff members about deaf-blindness, SSP's, cultural aspects,
communication methods and tips for approach and guiding.
Volunteers Kara Bull and Judy Knisely taught a section on
important signs to know. They also served as leaders for two
deaf-blind simulations.

The evaluations we received from the students were outstanding.
They particularly liked the simulations and learning sign
language. We are being asked to return for their net in-service
day.

NEODBA would like to think the other volunteers who made this
workshop a success: Ashlinacrae Kyle, Felicia Naoum, Maryann
Merendino and Ann Popplestone.

-----

Upcoming Event: Lakeland Community College Deaf Awareness Days

We are proud to announce that NEODBA has been invited to host a
booth at Lakeland Community College Deaf Awareness Days on April
11th and 12th. The purpose of the event is to promote deaf
education, culture and history. The entire event will run from
10:00 am to 7:00 pm. We will have our booth opened from 2:00 pm
to 7:00 pm on both days.

We are looking for volunteers! We would like to have at least
one deaf-blind individual present at all times. We will also
need volunteer SSP's and interpreters. Duties will include
helping set-up and close-down, encouraging people to visit our
booth, assist with passing out papers and serving as a
communication facilitator. In addition, we need extra SSP's to
take each deaf-blind member around to visit all booths.

If you are interested in being a volunteer, please contact Angela
at neodba.info@gmail.com. If you are unable to work at our
booth, we hope you will stop by and show your support for
NEODBA.

-----

SSP Coordinator Needed

We are still looking for a volunteer SSP Coordinator to replace
wonderful Amy Marshall, who moved out of state in late January.
This position is not overly time consuming. Your involvement
depends on how involved you would like to be. We are flexible
about that.

The main jobs of the SSP Coordinator is to handle our paperwork,
make the first call to a business about a social event, if
needed. Help plan for workshops, fund-raisers and events.
What we really need is for the SSP Coordinator to take charge at
social events, collect paperwork and money, pair-up SSP's with
deaf-blind members and oversee any problems or concerns by SSP's
or deaf-blind members.

If you are interested in becoming our SSP Coordinator, please
send an email to neodba.info@gmail.com

-----

Contact Us

Email: neodba.info@gmail.com
Facebook: www.facebook.com/neodba
Twitter: www.twitter.com search for neodba1

Please feel free to pass this newsletter along to help spread
the word about NEODBA

a new alarm clock

There is a new alarm clock on the market for people who are
deaf-blind. It's called "Helen." Right now the price is high -
$1,300. However, the technology sounds promising. H is more
information:

Helen is an alarm clock, created for the deaf-blind user without
compromising the small size and ease of operation that the
Milestone players are known for. The credit
card sized Helen makes sure the deaf-blind user gets up on time
in the morning. For the heavy sleepers, an external pillow shaker
is included that connects to Helen. During the day, users can
always check the time and with the integrated timer one can set
reminders - for instance in the kitchen or for public
transportation.

Helen does not use fragile watch hands, but offers the user very
tactile and big buttons. Simple but efficient vibration signals
announce the time and the last adjustment that was made, allowing
the deaf-blind user to set the time and create alarms
independently.

In addition to the vibration signals, a voice announcement can be
activated, for the benefit of an instructor during training
sessions.

For more details, visit:

http://www.bones.ch/bones/pages/eng/products/helen.html

fed up with parta!

I am so fed up with PARTA! I know that paratransit for people
with disabilities is poor all over the country. That is
troubling, indeed.

There has to be a way to improve such services. Blaming the
driver isn't going to help. The real issues are higher up.
Whether it stems poor management or lack of organization, it's
not fair what people with disabilities go through to get from
place to place.

Do people understand how serious this problem is? Let's look
at PARTA as an example. This is what they've put me through over
the past two months.

On January 9th, the driver took me to the wrong doorway. I was
unable to find my way around. This led to two students grabbing
my arms and pulling me around. I would not have been put in
that situation if the driver took me where I'm supposed to
go.

On February 6th, the driver again took me to the wrong door. I
walked around in circles until I finally had to call out for
someone to help me.

Also on February 6th, I was picked up from Kent State at 2:15.
I live less than 10 minutes away from campus. I was on the bus
for over an hour. I finally got home at 3:20. I barely made it
home before my 10 year-old-son.

On February 8th, my pick-up time was 2:15 to 2:45. PARTA did not
arrive until 3:20. I was frantic to find someone to meet my son
at home.

On February 15, the same situation happened. Once again, PARTA
picked me up at 3:20.

On February 22nd, the driver dropped me off at the wrong door. I
wandered around the unfamiliar area until I somehow found my way
to the elevator.

On March 2nd, PARTA picked me up from home 15 minutes late.
This made me late for my volunteer job at Hattie Larlham
Foundation. I am a punctual person. I do not appreciate that
PARTA made me late.

Also on March 2nd, PARTA picked me up for my return trip at 2:20.
I did not arrive home until 4:05. I had no idea where I was or
what was taking so long.

There are the facts, but what can we do about it? I tried
complaining, but PARTA never replied. It doesn't look like
they've done anything to improve, either.

I'm totally fed up, yet the sad truth is that PARTA is the only
option for paratransit in Portage County. It's PARTA or nothing
at all. I don't like it, but what choice do I have?

mom update

Car accident... Mom hurt... 3 broken ribs... Brain bleed...
Airlifting to Akron General...

These are some of the scariest phrases I've heard in my life.
I'm 38 years old now. On that horrible night three weeks ago, I
realized for the first time that my mother isn't Superwoman. She
can be hurt... And if things had been just a little different,
she could have died.

It has been hard watching my mother go through this ordeal. I
would do anything to take away her pain, but I can't. I must
believe that with time, she will fully recover and life will
return to normal.

Mom spent 10 days in the hospital. Because of the broken ribs,
bruised lung and COPD, she was having serious breathing episodes.
Although she had a lump on her head the size of two golf balls,
the brain bleed was small and stopped on it's own. I am so
thankful for that.

I visited her in the hospital five days after the accident. She
was obviously not doing well. I had trouble understanding her
fingerspelling. Her hands were so weak she couldn't properly
form the letters.

Even at that time, they said she'd be going home soon. The days
dragged on, but she still wasn't released. One day she was all
ready to leave. She called my father to pick her up. By the
time he got there, it was decided she had to stay another night.
The doctor wanted a new scan of her brain. It took awhile to
get the results back.

The next day her blood sugar was high because of medication.
They gave her insulin - too much, too fast. Her blood sugar
plumaged to 30. She nearly crashed. The incident left her
feeling weak, dizzy and scared.

We were all thinking the same thing. We had to get her out of
there before the hospital staff killed her.

On the 10th day, Mom was ready to break out of prison. My father
had to rush to the hospital to keep her calm. She was highly
anxious. If she had a panic attack, it would cause a breathing
episode, and she'd have to stay even longer.

Luckily, she was finally released from the hospital. The drive
home was painful and traumatic for her. It took 20 minutes to
get her from the car into our house. She was shaky and weak.
She couldn't talk to me, but just wanted to hold my hand.

The oxygen man came here right away to get that set up. Yes, Mom
is still on oxygen. There are lines running all over the house.
She's afraid I'll trip, but I've been fine with it.

Some people think it's over when the injured or sick are released
from the hospital. There's no truth to that one. But now all
the pressure is on the family to provide care and figure
everything out.

What upset me is that they just sent Mom home and let us deal
with her care. They didn't give her pain medication to help
with the ride home. My father needed to go to the pharmacy for
her meds, but he couldn't leave her alone. Then CVS kept making
mistakes. He didn't need all that extra stress.

It was almost a week before home care and rehab services were set
up. What happened in the mean time? My mother lay suffering
on the couch, while my father went crazy trying to care for her
and hold the family together.

Joseph still had activities to attend. I had class, massage
therapy and other events. We were out two drivers. Mom
obviously couldn't drive. and Dad couldn't leave the house. I
canceled many of my plans, but that made Mom really angry, which
would provoke a panic attack and breathing trouble.

Thank God for the many people who came to our aid. They provided
rides for Joseph and I. Some sat with Mom so that Dad could go
out for meds, groceries and other things. Many people sent
flowers and food baskets, as well as cards. The most helpful was
those who sent food. We didn't need to worry about cooking. We
always had something to just heat up and eat. Friends are still
sending meals. That is simply wonderful.

At this point, Mom is still on the couch. PT and OT have been
working with her to regain some strength. They got her started
with a walker. It was a beautiful moment last week when she
walked to the kitchen and had dinner with us for the first time.
She's been doing that most days.

One night this week, she just stood up and came to dinner. She
completely forgot about the walker. Now she's been walking on
her own more.

At this time, she is getting PT, OT, a visiting nurse and
clean-up each twice a week. They tire her out, so she doesn't do
much physically the rest of the day. She's getting uncomfortable
on the couch, so this week PT will start her working on the
stairs. That will be a tough one. She doesn't want to go up,
just to be trapped with no way to get down.

For every good day, there are several bad days. She's still so
weak, tired and in pain. Sometimes she's confused and easily
upset. Other times, she's her same old self.

My mother has already proven that she's an extremely strong
woman. She will get through this. I know it for sure. Thanks
you for all your prayers and well wishes.